eHealth may be described as the use of Internet-based and mobile technologies to assess, monitor, and improve health. eHealth activity among post-treatment cancer survivors is a vital area of study as survivors are a growing group with greater healthcare needs than the general population and more frequent healthcare involvement. eHealth represents a promising approach to addressing the multiple and often overwhelming needs of cancer survivorship, yet data show that survivors do not engage in a wide range of eHealth activity. This raises the questions 1) to what extent are diverse cancer survivors engaged in eHealth activity, and 2) what are the determinants of eHealth activity?
In this R01 study, funded by the Agency for Healthcare Research and Quality (AHRQ), we will conduct theory-driven mixed methods interviews in a population-based sample of approximately African American and white breast, prostate, and colorectal cancer survivors to assess general eHealth activity as well as specific activities. We will then select a subsample of participants for an ethnography of personal health information management (PHIM) in one’s home to examine the role of eHealth in the context of all PHIM practices. Finally, these data will guide the development of survivor-centered design principles that will inform the development of a software application prototype that will facilitate access to digital cancer survivorship resources.